What is it about?

Co-ResponsHIVility is a pilot programme of governance for the eradication of HIV and other Sexually Transmitted Infections (STIs) that aims to contribute in the transformation of the Research and Innovation system (R&I) to make it more open, inclusive and transdisciplinary, aligned with the European Commission that promotes the Responsible Research and Innovation (RRI) and Open Science & Open Innovation. The project has an interdisciplinary and transdisciplinary approach, so that is, it integrates a wide range of academic disciplines and non-academic knowledge based on experience, represented by more than 660 social actors interested in the subject.

It is carried out during 2016 and 2018 under the coordination of the Living Lab for Health and within the framework of the following projects: Xplore Health, EnRRICH, and INSPIRES; and also with the collaboration of VU University of Amsterdam, which is implementing a similar process in parallel.

What are the aims of the project?

One of the main objectives is to increase the social impact of R&I through the improvement of its governance, in order to integrate reflexive processes at systemic level, co-creation and generation of synergies between different social actors. Among other results, these processes are focused on the identification of unmet needs, foster a better relationship between research and implementation, co-define problems and co-create less compartmentalized and more effective solutions.  These processes also facilitate the learning and empowerment of the different actors with knowledge of the different lines of R&I, needs and expectations of the different actors, and with skills related to the RRI such as communication, co-creation and the deliberation among the R&I process and the ethical, legal and social aspects. In addition, it also helps to legitimize research and foster a culture of innovation.

Who are the actors involved?

Co-ResponsHIVility is carried out by the following actors:

Clinicians and researchers from IrsiCaixa and other research centres including the Fight AIDS Foundation, the Centre for Epidemiological Studies of Sexually Transmitted Disease and AIDS in Catalonia (CEEISCAT) , The August Pi i Sunyer Biomedical Research Institute (IDIBAPS) and the Bioethics and Law Observatory UB.

Policy makers from the Public Health Agency, from the Department of Health (members of the Community Advisory Committee (CAC) of IrsiCaixa) and from the Public Health Agency of Barcelona.

• Representatives of the civil society organizations working on HIV prevention (members of CAC, SIDASTUDI and CJAS).

• The education community: students, teachers and other professionals of the network of pilot schools of Xplore Health, and master students (supervised by senior researchers) from the Master in Specialized Communication of the UB and the Master of Training of Secondary Education Teachers of the UPF.

Experts in Responsible Research and Innovation (RRI), in multistakeholder engagement and in governance of the R&I from the Living Lab for Health at IrsiCaixa.

The project is divided into three stages:

  1. 1. Co-definition of an R&I Agenda on HIV and other STIs Prevention
  3. 2. Implementation of the priorities from the Agenda through training and advisement to the different actors leading the projects. In some cases in which the priorities are not covered, it is fostered the start of new projects with master students following the Science Shops methodology.
  5. 3. Reflection and evaluation of the processes to enrich the R&I programmes and re-define the on-going lines, and moving towards to the transformative change of the R&I system and to the implementation of new processes of R&I, some of them with advocacy in coalition.  

The entire process is cyclic and iterative, and includes research, innovation, reflection and action.

The first phase has been developed during the course 2016-17 and it has been co-defined an R&I Agenda on HIV and other SITs Prevention, that brings together the R&I lines for the different actors. During this first phase, there has been a consensus in the workplan, the educational community has received training on the topic and it has been invited to participate in 16 workshops and to share the results in a final congress in CosmoCaixa, with the collaboration of Xplore Health and EnRRICH projects. Furthermore, several workshops have been organised with the participation of different social actors, such as experts coming from different disciplines, clinicians, policy makers, experts from the civil society organisations and master students with the collaboration of InSPIRES

In the second phase some priorities from the Agenda have been implemented in a more open and inclusive way, and at transdisciplinary level (stigma, affective-sexual education and access to the HIV test and other STIs).

This phase has been carried out with research groups in collaboration with different social actors, and advisement and training on RRI has been provided. The projects have been presented in a final congress in CosmoCaixa, with the collaboration of the InSPIRES and Xplore Health projects.

The third phase, which is currently in process, aims to carry out a reflection and evaluation process with the different social actors to co-define the next steps.

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Irsi Caixa

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